U.S. rare disease patient feelings as of 2015

Feelings of patients with rare diseases in the U.S. compared to other patients as of 2015

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Release date

February 2016

Region

United States

Survey time period

2015

Supplementary notes

Patients with the following rare diseases responded to NHWS: lupus nephritis, cystic fibrosis, hemophilia A, hemophilia B, connective tissue disease, ITP, Paget’s disease, and Sjogren’s syndrome.

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